Libro blanco de las ACES Pediátricas 2024

Errores Innatos del Metabolismo. Anexos ❚ 237 C.2.7 Research skills • Design of clinical trials including medical statistics • Data organization and presentation • Computer literacy C.3. ATTITUDES C.3.1 Clinical • Appreciate the patient and families’ understanding of metabolic disease • Understanding of psychological stress of diagnosis of metabolic disorders • Understanding of ethnic and cultural differences in attitudes to metabolic disorders. • Understanding of the problems for the patient and family in progressive disorders and when the natural history is difficult to predict such as Leigh’s disease. • Working in partnership with others who care for the children to include multidisciplinary teams, education authorities, etc. C.3.2 Communication • Effective communication and appropriate approach to parents, children, colleagues primary care physicians and community health care staff, research and laboratory staff and managers C.3.3 Education • Commitment to continuing self-education and to teaching others C.3.4 Support and leadership • Supportive and sympathetic approach to handling families which can be maintained under difficult circumstances • Understanding and positive approach to the supervision of junior medical staff • Recognition of and coping with stress in self and others • Effective leadership of clinical teams C.3.5 Academic/Research • Innovative attitude to clinical problems • supportive to / active in research • Collaborative attitude to local and national colleagues C.3.6 Managerial • Interest in the overall organisation of departmental activities • Understanding approach to local management structure • Constructive attitude to the process of decision making • Acceptance of shared responsibility for the use of resources • Ability to respond effectively to clinical complaints